Received Oct 17; Accepted Apr This article has been cited by other articles in PMC. Abstract Background Little is known about the Quality of Life QOL in parents of children with developmental diseases as compared to other severe neurological or psychiatric disorders.
Intellectual disability, which originates before the age of 18, is a disability characterized by significant limitations both in intellectual functioning reasoning, learning, problem solving and in adaptive behavior AAIDD, This categorization sub-classifies intellectual disability according to the intensity and nature of needed supports.
In addition, it emphasizes the need for detailed assessment in all relevant domains, including psychological and emotional functioning AACAP, The concept of Quality of Life has been developed over many decades and applied to a wide range of target groups and whole populations.
Quality of Life is increasingly being used to plan, deliver and evaluate services for children with intellectual disabilities.
To successfully secure equal citizenship and promote positive quality of life for children with intellectual disability we need to explore what supports are required for such outcomes and what barriers parents of children with intellectual disabilities perceive may exist in their environment in the attainment of that quality of life of children with intellectual disabilities.
Parents of children with newly diagnosed SpLD regard four domains psychological, environment, social relationships spiritual as significant contributors to their overall QOL. Mother of children with Sp L. Parents of children with SpLD experience a lot of stress and impaired mental health Karande and KulkarniSloper stated that parents often have to negotiate complex barriers to access support services such as respite, health or social care and Chadwick et al.
Suggest that respite care was primarily regarded as a service that was provided to relieve parental burdens. Objective of the study: To study the relationship between specific domain of quality of life of parents and level of severity of children with intellectual disabilities.
There will be significant relation between quality of life of parents of children with intellectual disabilities and socio economic status of family. A purposive incidental sample of 60 parents having children with Mental Retardation. The children with mental retardation with Behaviour Problem.
After obtaining their informed consent the following tools will be administered on Parents of children with intellectual disabilities. A specially designed Performa to obtain the demographic and clinical details will be used.
For assessing quality of life of parents having children with intellectual disabilities. It is designed for cross-cultural subjective assessment and it can be used in any country where people can read and understand English.
It measures 26 items and it is possible to derive four domain area scores. It is possible to derive four domain scores.
There are also two items that are examined separately: The four domain scores denote an individual Vs perception of quality of life in each particular domain.
Domain scores are scaled in a positive direction i. The mean score of items within each domain is used to calculate the domain score. Mean scores are then multiplied by 4 in order to make domain scores comparable with the scores used in the WHOQOL The method for converting raw scores to transformed scores when using the instructional method given in manual, the first transformation method converts scores to range betweencomparable with the WHOQOL The second transformation method converts domain scores to a scale Popular Essays.Quality of life can be impaired in children, adolescents and adults with ADHD Registration gives the benefit of site update e-mails and additional information from Shire on .
Adults with OBPIs and parents of children with permanent OBPIs reported worse utility scores, and therefore quality of life, compared to the English general population. We also identified certain characteristics as possible factors to consider when dealing with utility scores in these cohorts.
Aim: The present study will find out the quality of life of parents of children/adults who have an intellectual disability and who are availing of services from different rehabilitation centre in New Delhi.
Objective of the study: •To study the quality of life of parent of children with intellectual disabilities. This article draws on a recent study that investigated the quality of life of parents of children/adults who have an intellectual disability and who are availing of respite care.
The findings suggest that parents are experiencing ‘good’ to ‘excellent’ quality of life and that demand exceeds supply.
This study was designed to evaluate the parental quality of life (PQoL) of parents of children and adolescents who have PKU and identify possible predictors of PQoL. In this cross-sectional study 89 parents completed self-report measures of PQoL, family stress, social support, and parental coping.
Quality of life of parents of children/adults with an intellectual disability Introduction: Intellectual disability is not a single, isolated disorder. The American Association of Intellectual and Developmental Disability (AAIDD) provide a tri-dimensional definition of intellectual .